When Your Child Has Lyme Disease: A Parent's Survival Guide, by Sandra K Berenbaum, Dorothy Kupcha Leland
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When Your Child Has Lyme Disease: A Parent's Survival Guide, by Sandra K Berenbaum, Dorothy Kupcha Leland
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Lyme disease can cause puzzling symptoms in children, including pain, fatigue, gastrointestinal upsets, learning disabilities, behavioral issues and psychiatric problems. The illness can be hard to diagnose, however, and Lyme-related controversies in the medical world complicate the picture. Parents seeking help for their suffering children often don't know where to turn. .When Your Child Has Lyme Disease: A Parent's Survival Guide is filled with information parents need to know about Lyme, as well as practical strategies based on the authors' personal and professional experiences. It offers guidance on finding the right medical care, coping with treatment, developing effective boundaries with others who don't understand what your family is going through, advocating for your child's educational needs and managing day-to-day family life. .Connecticut psychotherapist Sandra K. Berenbaum has counseled Lyme patients and their families for over 20 years. Co-author Dorothy Kupcha Leland, is a parent and national activist who writes the blog Touched by Lyme. Foreword by Richard Horowitz MD, author of Why Can't I Get Better? Solving the Mystery of Lyme and Chronic Illness. .2016 Eric Hoffer Book Award: Honorable Mention2016 Northern California Publishers & Authors: First Place, Adult Non-Fiction
When Your Child Has Lyme Disease: A Parent's Survival Guide, by Sandra K Berenbaum, Dorothy Kupcha Leland- Amazon Sales Rank: #243548 in Books
- Published on: 2015-09-07
- Original language: English
- Number of items: 1
- Dimensions: 9.00" h x .58" w x 6.00" l, .76 pounds
- Binding: Paperback
- 254 pages
Review "I wish I'd had this smart, fearless, insightful handbook on my own journey through the Lyme thicket. From negotiating with schools to handling doctors and relatives to tending a sick child's physical and psychic pain, Sandra K. Berenbaum and Dorothy Kupcha Leland have covered it all in When Your Child Has Lyme Disease: A Parent's Survival Guide. The best advice ever -your copy of this book will end up dog-eared with highlights and margin notes, and you'll carry it everywhere."Pamela WeintraubAuthor, Cure Unknown: Inside the Lyme Epidemic"An invaluable resource.... This remarkable book is both a practical guide and emotional touchstone....If you have a child with Lyme, no matter where you and your family are on this journey, this guide can help." John McCormick, The Huffington Post "The book opens with the authors' experiences with Lyme Disease: a mother seeking a diagnosis and a therapist stricken with Bell's Palsy, a well-known Lyme calling card. The chapters continue to blend the authors' different perspectives, weaving a narrative applicable to anyone touched by the disease. While personal, the book contains myriad facts and a top-down view of the disease and its current impact in the US. Because of professional dogmatism, poor detection, and even financial interests, Lyme Disease remains an ailment confined to the shadows, making sufferers (especially parents) reliant on social support as much as medical protocol. In this way, the title complements the growing online communities of afflicted and affected people. Sections tackle everything from diet and exercise to mitigating the disease's impact on a child's social well-being. It effectively straddles the de facto faith in mainstream medicine and the often more personal and intuitive insights of alternative medicine." US Review of Books "A Roadmap for mothers and fathers, giving practical strategies for parenting a child with Lyme." Dr. Richard Horowitz.
About the Author For over 20 years, Sandra Berenbaum's psychotherapy practice has focused exclusively on Lyme disease patients and their families. She has developed responsive psychotherapy, an approach geared to the specific needs of families coping with tick-borne illness. Her presentations at both national and regional conferences have helped educate practitioners about how to work with patients who have Lyme disease. Dorothy Kupcha Leland has a professional background in journalism, politics and book publishing. After her daughter became seriously disabled by Lyme disease in 2005, she became active with the national advocacy group LymeDisease.org. She now serves as its vice-president and writes the blog "Touched by Lyme."
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Most helpful customer reviews
5 of 5 people found the following review helpful. Useful for parents By Eliza Graham Finally!! A guide to help parents of children with Lyme disease! This book walks you through what it’s like to have a child with Lyme. It touches on just about every problem that might arise, from issues with your school district to ones with your extended family members. This book is co-authored by a psychotherapist who works with families affected by Lyme, and part of her job is going to school meetings to advocate for the sick child. I didn’t even know that was a thing! I have a whole notepad full of information from this book. Very useful.
4 of 4 people found the following review helpful. I'd recommend this to any parent struggling through this horrible disease ... By K. B. I found so many similarities to my story here in this book. I've been a single parent of a child who has been suffering for over 4 years. We have seen countless specialists and doctors and have only recently come to find that my daughter has been suffering from Lyme Disease. It has taken over her life and mine and has taken every minute of my time and every ounce of my strength to work through this. I wish I had read this book years ago. I'd recommend this to any parent struggling through this horrible disease with their child.
4 of 4 people found the following review helpful. The only book of its kind By Robert Bransfield This is the only book if its kind and is a very comprehensive and accurate resource for parents who have children with Lyme and associated tick-borne diseases. These infections in children need much greater attention and parents need a broad base of information in order to make informed decisions. I thank the authors for making such a contribution!Robert Bransfield MD, DLFAPA
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